Hey Jude - Neuromuscular Disease Friedrich's Ataxia (FA) Group
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https://www.tagged.com/lisalally
My youngest son Jude was diagnosed with a rare heredity degenerative neuromuscular disease when he was 16. Although he fought it for a long time he finally had to succumb to a wheelchair a few years ago. He is now 27 and is still trying to hang in there the best he can. He graduated from the University of Kentucky in 2006 with a BA in Business Administration but is unable to hold down a job now due to his physical disabilities. However he can still type and has become quite a writer/poet and even got his first chapbook of poetry published in February 2010. You can check out his work and join his fan club at www.facebook.com/pages/Jude-Lally-Poetry-Fan-Club/178985352116555. I started this group to try to find other people who are either afflicted with FA or who are caretakers for those who are. I wrote and recorded a song called "Jude" that you can hear on my music site at www.facebook.com/pages/Lisa-Lally-Music/329931787293.
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         i got lou gehrigs als im praying for all im also figh…  | 
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         Lisa, A Phenomenal Mother and Person Lisa, your devotion and passion left me speechless and want…  | 
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         Dear Lisa and Jude, Please know that I will keep you both i…  | 
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         In my prayers.  | 
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